I haven’t blogged a rant in ages but a comment today has bought up several that I’ve heard throughout my journey with CKD and Kidney Failure.
I did actually openly write this on my personal Facebook status but I have a large audience on my blog so thought I would also share with you guys as it’s something that is a regular occurance not only in my life but others with silent diseases or disorders too!
So as someone who is very much online with my support groups, social media and blogs I am open to pretty much everything and anything and of course I receive mostly the amazing messages of support and love from people I don’t even know but unfortunately there are a selected few who like to give people shit.
So… I have had random messages over Facebook mainly. Anyway the messages normally consists of… Get a life, you spend far too much time on the Internet, you’re not really ill, you’re faking it, you’re an attention seeker, stop sponging off of the government, get a job…. The list goes on…
I actually feel sorry for how uneducated people can be in this society, it’s actually quite disappointing to see how naive people can be. It’s also very sad that people go out of their way to try and dampen down someone’s day just to make themselves feel good and then 9/10 run on to a group or their online friends and tell everyone how big and clever they are for stating shit they have no clue about. There just seems to be no understanding or even trying to understand a person.
I have never been an attention seeker, you need confidence to crave attention and I lost a lot when I became ill. I selfie on the days when I feel confident but most of the times I’m too damn right tired to even get out of my pyjamas! So you’ll notice I will selfie on the same day.
I became too ill to be independent, that alone knocks you down. Chronic Kidney Disease is actually nicknamed the silent killer, and if you don’t know much about it then I suggest you look it up and do some research before trying to tell me ‘you’re not really ill’
Yes, I have been very fortunate to receive a transplant from my Mother but if educated or you actually asked questions then you would actually know that a transplant doesn’t last forever and there is no cure for CKD! Whatever treatment we are receiving whether it’s dialysis or transplant we will NEVER feel ‘normal’.
Being told to stop sponging off of the government is another one that really grinds my gears. I have worked every day of my life since I was 16 years old right up to when I was 25 almost 26 in January 2015 because I became too unwell to work, I got signed off and declared unfit for work by my GP and was diagnosed with IgA Nephropathy CKD stage 4 which is in fact one stage away from kidney failure which within a few months of diagnosis I was rushed to hospital to have emergency dialysis otherwise I wouldn’t be here!
You never realise how important your kidneys are until they aren’t working properly or they fail on you. It kills people on a daily basis! I’ve looked death right in the eyes twice!
I got completely signed off of work and fought to get personal independence 4 times and there is ALOT of tests it entails so believe me it’s not something you can fake!
I actually can’t wait to resume my life and start earning my money in a good job. That to me sounds amazing!
So I am sorry if I have had a year off of work because I have had to concentrate on more important things like keeping myself alive!
I spend a lot of time on the Internet, yes. And what? It keeps me sane and your comments just make me even more stronger so continue! Eventually you’ll get bored. I have loads of successful support groups, my blog, as well as using it for social media and being an agony aunt to help and advise others!
I NEVER say poor me because everyone has their own shit to deal with and this is just mine, I can’t change it so there is no point in crying over it! You just got to get on with it and try your best to remain positive which I do a damn good job in doing despite your stupid idiotic comments and what I deal with!
I am sick of seeing comments of stupidity that people receive who are in the same or similar position to me, the compassion and understanding is running low and it disgusts me that people are too judgemental and ride and so very wrong.
If you are one of those people who want to judge me then be my guest and get out of my life because your drama and stupidity is not needed in this life of mine!
I am all for answering questions of those who are curious and want to know more about things or understand. But don’t accuse me of stuff that you’re so clueless about, it actually makes you look a twat!
Hope everyone is having a good Monday, and I shall be back soon xxxx